About Indigene Study
Welcome to Indigenous Linguistic and Cultural Concepts of Heritability and Comprehension of Genomics Research in Nigeria (Indigene Study)
What is Indigene Study?
The Indigenous Linguistic and Cultural Concepts of Heritability and Comprehension of Genomics Research in Nigeria (INDIGENE) study is an NHGRI funded research exploring linguistic and cultural concepts used to describe heritability of traits and diseases by indigenous Yoruba in Nigeria.
Methodology
The concepts and words that they use can be integrated into informed consent process to enhance comprehension of informed consent in genomics research.
Our methodology can be replicated in other groups and populations to identify similar words, phrases, idioms and proverbs for the enhancement of informed consent in genomics research in those populations.
Progress so far
We have already identified words, concepts, proverbs and other expressions used to express knowledge and understanding of transmissibility or heritability of characters, traits and diseases among the Yoruba. These words show that the Yoruba understand genomics concepts such as traits, dominance, heritability, recessivity sex-linkage and their relationship to physical traits and diseases.
We invite researchers to contribute to this online repository of indigenous words and phrases by contacting us and submitting similar words and phrases in their languages
Browse Available Languages
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Meet Members of the team
Our researchers have profound interest in conducting empirical research on the research ethics. We use combination of qualitative and quantitative methods in our projects and our institution in Nigeria is a Center of Excellence in qualitative research methods using Atlas.ti.
The Indigene Project team is led by Dr. Clement A. Adebamowo MD, FWACS, FACS, ScD, FASCO, Research Scientist at the Center for Bioethics and Research (CBR) and the Institute of Human Virology Nigeria (IHVN) in Nigeria; and Professor of Epidemiology and Public Health; Member, Institute of Human Virology, Center for Vaccine Development and Global Health; Center for Research on Aging and Associate Director (Population Science), Marlene and Stewart Greenebaum Comprehensive Cancer Center, University of Maryland School of Medicine, Baltimore, Maryland, U.S.
Sally N. Adebamowo MD, MSc, ScD is an Assistant Professor at the Department of Epidemiology and Public Health, and Greenebaum Comprehensive Cancer Center, University of Maryland, School of Medicine, Baltimore, MD, U.S. She is a physician and epidemiologist with expertise and publications in ethics, biostatistics, qualitative methods, clinical trials, epidemiology and genomics studies.
Ayodele S. Jegede MHSc, PhD is a Professor of Medical Sociology, Anthropology and Bioethics, Department of Sociology, Faculty of the Social Sciences; Chairperson, Social Science and Humanities Research Ethics Committee, University of Ibadan, Ibadan, Nigeria; Faculty Member, West African Bioethics Training Program. A recipient of many scholarships and fellowships, Prof. Jegede has conducted and published several qualitative studies in reputable international journals.
The study is coordinated by Rasheed O. Taiwo, Research Associate at the Center for Bioethics and Research (CBR), Nigeria and graduate student at the University of Ibadan, Nigeria. With extensive trainings in research methodologies and bioethics, he has practical experience in manpower training, educational measurement, programme evaluation, research design, bioethics and genomics research.
Temilola Yusuf, Pharmacist with interest in Pharmacogenomics and ethical conduct of qualitative, epidemiological and clinical research. She has been involved in a number of genomics research as a Research Associate at the Center for Bioethics and Research (CBR), Nigeria.
Faith Fagbohunlu, a Research Nurse at the Center for Bioethics and Research (CBR), is passionate with clinical studies. She has several years of hands-on work experience in ethical research, qualitative methods, epidemiological and genomcs studies.
Gbemisola Jenfa is a Research Nurse at the Center for Bioethics and Research (CBR). She has received trainings in Bioethics and has participated in several in epidemiological, genomcs and qualitative research.
Kunle Oyafajo is a Certified IT Solution Architect and PMP. He is the web master and system administrator with responsibilities on this project for all activities related to the website.
Indigene Study across different locations
Photo Gallery - Cross section of some Focus Group Discussion (FGD) participants in Indigene Study
Supported by
The Indigene Project is funded by the National Institutes of Health (NIH) Grant No. U01HG007654 and is one of the Human Heredity and Health in Africa (H3Africa) Consortium projects. We thank all team members who worked on the Indigene Project.
Recent Genomics and Ethics Related News
Genetic Ethics | bioethics.com
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This Woman Will Decide Which Babies Are Born
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These Identical Twins Both Grew Up with Autism, But Took Very Different Paths
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Scientists Find Genes Can Raise Obesity Risk ‘By Six Times’
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mRNA Drug Offers Hope for Treating a Devastating Childhood Disease
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A New Edition of European Journal of Human Genetics Is Now Available
European Journal of Human Genetics (vol. 32, no. 3, 2024) is available online by subscription only. Articles include: “Gene Selection by incorporating genetic Networks into Case-Control Association Studies” by Xuewei Cao, et al. “Psychological Impact of additional Findings Detected by … Read More
The post A New Edition of European Journal of Human Genetics Is Now Available first appeared on bioethics.com.
New Genetic Analysis Tool Tracks Risks Tied to CRISPR Edits
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DNA Test Says It Can Predict Opioid Addiction Risk. Skeptics Aren’t So Sure.
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Doctors Can Now Edit the Genes Inside Your Body
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The DNA Scandal That Threatens Thousands of Criminal Cases
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One Twin Was Hurt, the Other Was Not. Their Adult Mental Health Diverged.
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Meet the Fetal Surgeon Forging CRISPR’s Next Frontier: Curing Diseases in the Womb
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A New Edition of European Journal of Human Genetics Is Now Available
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‘All of Us’ Genetics Chart Stirs Unease Over Controversial Depiction of Race
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The post ‘All of Us’ Genetics Chart Stirs Unease Over Controversial Depiction of Race first appeared on bioethics.com.
MEGA-CRISPR Tool Gives a Power Boost to Cancer-Fighting Cells
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Scientists Find Genetic Signature of Down Syndrome in Ancient Bones
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The post Scientists Find Genetic Signature of Down Syndrome in Ancient Bones first appeared on bioethics.com.